The last 24 hours have been some of the craziest that we've had since her diagnosis. It all started when I forgot to give her Lantus at dinner time. ugh. She was on the low side...about 90....and having a grilled cheese to eat (12g), a small scoop of cottage cheese and a few baby carrots. I assumed that I just needed to treat this like her bedtime snack as well, seeing that it was 7 p.m. and she would be heading to bed within the hour. So, I didn't give her a shot of novolog...and it all calculated out that she didn't need any. Well, because I didn't give her novolog, the Lantus just slipped my mind, because I always combine the two.
She was in the mid-100's an hour later and I knew she would continue to go up some more, but it still hadn't hit that I'd forgotten the Lantus. At midnight, she was 350 and when I saw the number, I realized what I had done! Okay, what to do next? I had been wanting to switch her Lantus back to morning for this very reason....I've nearly forget every night! But if we do it in the morning, it just fits in our routine so much better. She eats breakfast at the same time and we don't have somewhere crazy to run off to. So, I decided to give her a correction and then would just wait til morning and give her the Lantus then. I had the brilliant plan of giving her half of the dose of Novolog that she normally would, because I was afraid she would crash on me. So, I give her a unit and decide to stay awake, just in case there are any problems. An hour later she was down to 141....so she was falling fast and I began to realize that this could be long night. :( Half an hour later, she was down to 78! Woke her up, gave her about 10 grams of carbs (hot chocolate) and she and I conked out on the couches. At close to 5, I woke up and checked her....67. Ugh. Juice box, then she and I went to bed.
I think Jeff told me that she woke up at 108. I'm not sure how much she had at breakfast, because Jeff did it all. So...off to church we go. I always check her before she heads to Sunday School and today she was 191. Perfect. 15 minutes before the service is over, Jada's Sunday School teacher runs into the theater (yes- our church meets in a movie theater) with Jada in her arms! Jada can hardly hold her head up....I run for her juice and check her while she's drinking it.....28. CRAP. I went ahead and gave her a granola bar, too, because I had the feeling that juice wasn't going to cut it.
I must say, I am SO glad that Miss Amy was her teacher today, because she is one of the most attentive, observant people that I know and she clued in on Jada quickly. She said that Jada suddenly became very quiet and the color was completely gone from her face. She grabbed Jada by the hand to bring her to us and Jada kept falling down, so she scooped her up and ran to get us. THANK YOU Miss Amy for your quick thinking! And I think it's time to send her meter and a snack with her to Sunday School!
So, I was thinking the drama for the day really should be over, but we have fought lows all day long. Even after eating pizza for lunch of all things! I even dosed her for half of what she should have and she still fell to 68. Grocery shopping at Wal-mart this evening turned into treating a low of 48 in the checkout line.
I'm tired tonight as I'm waiting to check her before I head to bed. I'm really hoping that she's on the high side, I will go crazy if I have another sleepless night! At least this time, if she is, I know that she's got that Lantus working to keep the numbers down.
I'm hoping for a much better night tonight!
Monday, October 19, 2009
Friday, October 16, 2009
Color Our World BLUE!
Who else is TIRED of this disease being misunderstood??? Of people thinking that insulin is a CURE???? Of the food police who say our kids can't eat SUGAR?? Or--that if we had just fed our kids right to begin with....they NEVER would have acquired diabetes!! It's time for some AWARENESS and that's what we're going to create!!
If you are even REMOTELY as frustrated about this as the rest of us, then it's time to step up and take some action. World Diabetes Day is November 14 and it's time to make some noise. Joanne - who is an amazing, blogging D-mom, is getting price quotes on t-shirts that will support this cause and that we can all wear together and stand in SOLIDARITY on November 14th. Head to her blog- Death of a Pancreas- and let her know that you are interested in a shirt. It's time to color the world BLUE!
If you are even REMOTELY as frustrated about this as the rest of us, then it's time to step up and take some action. World Diabetes Day is November 14 and it's time to make some noise. Joanne - who is an amazing, blogging D-mom, is getting price quotes on t-shirts that will support this cause and that we can all wear together and stand in SOLIDARITY on November 14th. Head to her blog- Death of a Pancreas- and let her know that you are interested in a shirt. It's time to color the world BLUE!
Sunday, October 11, 2009
D-O-N-E DONE!
DONE DONE DONE! I am DONE with insulin pens. I don't think I'm doing anything wrong with them. I'm following the instructions. I'm counting to 20- yes- TWENTY- after injecting her to make sure it all gets in her little body and insulin is STILL spilling onto her arm. And we are having horrible- awful- high numbers. Last night, she hung out in the 400's and woke up at 285. She came down to 155 at lunch, but after lunch she was 430! And...insulin spilled onto her arm even after I dosed her for half a unit more than she needed just in case that happened. We gave her a correction at snack time and she was down to 180 at dinner. What am I supposed to do...guess how much insulin made it inside and try to make up for it???
Sorry for my rant, but there is no NEED for these numbers. And it's NOT good for her. So there. That's it. I'm DONE.
Sorry for my rant, but there is no NEED for these numbers. And it's NOT good for her. So there. That's it. I'm DONE.
Saturday, October 10, 2009
It's the Weekend
Whew......made it through this week! Jeff has started his new job....working 8-5 Monday through Friday which is a huge change for us. In our 12 years of marriage he has never once had a Monday through Friday job! Do I miss the restaurant business??? NOPE! Not one bit! :)
I've also had a change in my routine as well. I'm now watching 2 sweet little ones....a little girl (age 2 1/2) and her baby brother (4 months) during the week. It's been a welcome change for me...I didn't realize just how much I missed having a baby around!!! So, I'm getting my baby fix and Jada has a playmate during the day while everyone else is at school!
On the D-front, things are just so-so. This last week hasn't been as frustrating as the week before, but she is consistently high- like really high- at her midnight check- which is what we were trying to keep from happening. I really wish we would just go back to how we were doing things, and we might. Jada has a well child check in two weeks and we'll be discussing that!
So, talking about those high numbers- last night was the worst she's had since I don't know when! I checked her at 11:30 and she was in the mid-200's. I decided to go to bed and then set my alarm for 2:00 am. I woke up at 1:30 to Jada at my bedside telling me that she's thirsty. So, we check---- 550!!! What???? I'm not sure what happened. We had pizza for dinner--so that may have done it. She's not had a problem with pizza in the past, but maybe it's something I need to be more careful of in the future. So, I gave her a correction and sent her back to bed. She woke up at 70...but has been tired and crabby all day. Funny.....so have I. ;)
In other news, the last few days we've had spectacular weather for October in Alaska. Nearly 60 degrees today...not too shabby for just being about 180 miles south of the Arctic Circle! We'll take it...because once it's gone....it's gone until the end of April.
I've also had a change in my routine as well. I'm now watching 2 sweet little ones....a little girl (age 2 1/2) and her baby brother (4 months) during the week. It's been a welcome change for me...I didn't realize just how much I missed having a baby around!!! So, I'm getting my baby fix and Jada has a playmate during the day while everyone else is at school!
On the D-front, things are just so-so. This last week hasn't been as frustrating as the week before, but she is consistently high- like really high- at her midnight check- which is what we were trying to keep from happening. I really wish we would just go back to how we were doing things, and we might. Jada has a well child check in two weeks and we'll be discussing that!
So, talking about those high numbers- last night was the worst she's had since I don't know when! I checked her at 11:30 and she was in the mid-200's. I decided to go to bed and then set my alarm for 2:00 am. I woke up at 1:30 to Jada at my bedside telling me that she's thirsty. So, we check---- 550!!! What???? I'm not sure what happened. We had pizza for dinner--so that may have done it. She's not had a problem with pizza in the past, but maybe it's something I need to be more careful of in the future. So, I gave her a correction and sent her back to bed. She woke up at 70...but has been tired and crabby all day. Funny.....so have I. ;)
In other news, the last few days we've had spectacular weather for October in Alaska. Nearly 60 degrees today...not too shabby for just being about 180 miles south of the Arctic Circle! We'll take it...because once it's gone....it's gone until the end of April.
Tuesday, October 6, 2009
Late Night Update
We are nearly at a week since we switched her Lantus dosage to night and I'm still not happy with the changes, but I'm not nearly as frustrated either. I have seen a gradual improvement in numbers and I've spent a lot of time thinking about what possibly could have gone wrong.
We've not changed the amount of Lantus that she's taking- just the time of day. I would have thought that after a few days, it would have straightened itself out. We also did 3- yes- count'em- 3- changes at the same time.
1. We moved the Lantus to evening.
2. We changed to the Novopen, Jr.
3. And.....we've changed to the Lantus pen.
And...I don't think I like the pens and I think the Novopen is causing some VERY high numbers after meal times. When I give her the shot of insulin from the pen, we ALWAYS have some leaking onto her arm and some is dripping out of the tip. I count to 10 (would go longer but are you kidding me? I can barely get her to sit still for that long!) and when I pull it out, I have to wipe the insulin off of her arm. Today, at lunch I dosed her for 35 grams of carbs- she ate only about 3/4 of it and when she woke up from her nap she was 421!! I ended up giving her a shot (syringe) for her snack and she was back down to 116 at dinner which ROCKS! :) That has been the consistent story with her and I really think these wacky high numbers are more due to her Novopen, Jr. than the switching to night.
Well- that's the short of it. I'm so tired I can hardly see the screen! Thank you ladies for your supposrt and encouragement!! Love you all!
We've not changed the amount of Lantus that she's taking- just the time of day. I would have thought that after a few days, it would have straightened itself out. We also did 3- yes- count'em- 3- changes at the same time.
1. We moved the Lantus to evening.
2. We changed to the Novopen, Jr.
3. And.....we've changed to the Lantus pen.
And...I don't think I like the pens and I think the Novopen is causing some VERY high numbers after meal times. When I give her the shot of insulin from the pen, we ALWAYS have some leaking onto her arm and some is dripping out of the tip. I count to 10 (would go longer but are you kidding me? I can barely get her to sit still for that long!) and when I pull it out, I have to wipe the insulin off of her arm. Today, at lunch I dosed her for 35 grams of carbs- she ate only about 3/4 of it and when she woke up from her nap she was 421!! I ended up giving her a shot (syringe) for her snack and she was back down to 116 at dinner which ROCKS! :) That has been the consistent story with her and I really think these wacky high numbers are more due to her Novopen, Jr. than the switching to night.
Well- that's the short of it. I'm so tired I can hardly see the screen! Thank you ladies for your supposrt and encouragement!! Love you all!
Thursday, October 1, 2009
I KNOW- NOT SUPPOSED TO BE D-BLOGGING BUT I JUST HAVE TO SAY THIS!
I'm beginning to think this Lantus switch to night thing IS A
NOT SO GOOD TERRIBLE VERY BAD IDEA!!!!!
NOT SO GOOD TERRIBLE VERY BAD IDEA!!!!!
Lantus at Night
We did it- got that Lantus switched over to night. Now- we'll watch those numbers over the next few days and see what happens. As I mentioned in my last post, she ran high all day yesterday and I just assumed that she would run high during the night as well, with things getting straightened out during the day today.
Yeah.
Right.
At her midnight check, she was in the low 60's. She was oh so tired and she refused to eat a slice of bread and butter- all I could get down her was a juice box- 15 grams. What do you do? I knew that she needed something more substantial than juice- but knew that I would be keeping a close eye on her and would be able to catch a crash.
Yeah.
Right.
I checked her 20 minutes later and she was on her way up- 146. I went to bed and set my alarm for two hours later- 2:30 am. She was 160. Good- I can sleep some more. 4:30 a.m. 155. Down a little, but not too much of a change. I thought- she's good. I can sleep til it's time for everyone to wake up.
Yeah.
Right.
Jada had crawled into bed with us at some point after her last check and when she heard Jeff get up- she did, too. About 7:30 am. I lay there and I could hear her meter beep as he took her blood sugar. !!46!! WHAT???
Maybe I should have woken up at 6 or 6:30 to check her again....maybe I should have checked her after I knew she was in bed with us. Who the heck knows....
I'm sure that changing things up did affect her. She wasn't very active yesterday- it's getting colder here and not as comfortable to play outside for extended periods of time.
Any how...after all that.....Jeff forgot to give her the morning dose of Novolog! :) We figured that part out about an hour after she ate and she had only climbed to 224. At lunch, she was down to 180- so we didn't mess up too badly.
Poor girl. I'm amazed at how she thrives in spite of us!
Yeah.
Right.
At her midnight check, she was in the low 60's. She was oh so tired and she refused to eat a slice of bread and butter- all I could get down her was a juice box- 15 grams. What do you do? I knew that she needed something more substantial than juice- but knew that I would be keeping a close eye on her and would be able to catch a crash.
Yeah.
Right.
I checked her 20 minutes later and she was on her way up- 146. I went to bed and set my alarm for two hours later- 2:30 am. She was 160. Good- I can sleep some more. 4:30 a.m. 155. Down a little, but not too much of a change. I thought- she's good. I can sleep til it's time for everyone to wake up.
Yeah.
Right.
Jada had crawled into bed with us at some point after her last check and when she heard Jeff get up- she did, too. About 7:30 am. I lay there and I could hear her meter beep as he took her blood sugar. !!46!! WHAT???
Maybe I should have woken up at 6 or 6:30 to check her again....maybe I should have checked her after I knew she was in bed with us. Who the heck knows....
I'm sure that changing things up did affect her. She wasn't very active yesterday- it's getting colder here and not as comfortable to play outside for extended periods of time.
Any how...after all that.....Jeff forgot to give her the morning dose of Novolog! :) We figured that part out about an hour after she ate and she had only climbed to 224. At lunch, she was down to 180- so we didn't mess up too badly.
Poor girl. I'm amazed at how she thrives in spite of us!
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